First-time mum Molly-Mae Hague has shared an honest account of parenting a newborn. The former Love Island star admitted to only just feeling like she's getting her life 'back in order' after welcoming baby daughter Bambi almost six weeks ago.
'My baby boy had chest infections and stared off into space - months later he was diagnosed with 1 in 20k condition'
15.02.2023 - 09:37 / manchestereveningnews.co.uk
Adam Ward and his wife Rebecca welcomed their little boy Max into the world in March 2021.
He was their second child. The family, from Bamford in Rochdale, were made up. After a few weeks, Max was routinely hit by chest infections.
He also had a tendency to stare into space and not look his loving parents in their eyes. Due to their concern, Adam and Rebecca were ‘constantly’ going to Royal Oldham Hospital.
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After rounds of testing and multiple diagnoses, the couple were told Max had one of the rarest medical conditions in the world. Now, just short of his second birthday, Max will see Manchester Cathedral lit up blue - to raise awareness of Angelman Syndrome.
The condition affects roughly 1 in every 20,000 births, which is 20 times rarer than Down’s Syndrome, another genetic condition. Unlike Down’s Syndrome, which can be screened for during pregnancy, symptoms of Angelman don’t appear until the baby is at least six months old.
For Max, the first sign of trouble were chest infections and not looking at you, dad Adam explained: “He had chest infections, that was the main thing. He would go in with an infection and four weeks later we would be back.
“We did realise a few weeks later he would not look at you and stare into space. It was only because he was constantly being admitted at Oldham that they sent off for the genetic tests. Then we had the tests and he got the diagnosis.”
Max was first diagnosed with absence epilepsy, where he would ‘blank out’ for a few seconds before coming back round. After genetic tests came back, the data confirmed that his maternal chromosome-15 had been ‘deleted’, Adam added,
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