Mum with heartbreaking "invisible condition" was made to feel like hypochondriac
09.05.2024 - 04:41
/ dailyrecord.co.uk
A Scots mum has told how she was made to feel like a 'hypochondriac' when seeking a diagnosis for an invisible condition that led her to retire in her 40s.
Sarah Heney from Edinburgh says she attended appointments with the same doctor on many occasions with different symptoms but her GP was never able to make a diagnosis.
Years later the 60-year-old was diagnosed with lupus a non-curable long-term condition that can leave sufferers with joint pain, skin rashes and tiredness. In severe cases it can lead to life-threatening complications.
Speaking to Edinburgh Live Sarah said: "I always saw the same GP, and to be honest it was with lots of random and what seemed separate little issues. With the amount I was going to the doctors, I felt like I was a hypochondriac.
"Then, in 2009 this particular visit I ended up seeing someone different and he suggested all the issues I had going on were due to something systemic. Maybe Rheumatoid Arthritis."
With her initial rheumatology appointment not for another three months, Sarah ended up doing as much research into the condition as she could, only for her to turn up to this appointment and to be told it wasn't this at all.
Her health then began to deteriorate quite quickly.
"At the same time as all these were going on, I was the marketing manager at The Playhouse for over 20 years - I was in a job I was passionate about, running a team of six.
"My health was progressively getting worse, I had constant chest infections, 50 per cent of my hair had fallen out, extreme fatigue, and cognitive dysfunctions.
"My office was on the eighth floor, I just couldn’t manage it. I could barely get up the stairs or breathe. And my brain just wasn’t working, I would blank out often."
When Sarah was next seen