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19.05.2022 - 13:17 / dailyrecord.co.uk
A family are heartbroken at the loss of their young daughter who sadly passed away on the morning of May 14.
Sarah Thompson and Lee Metcalf had gone through two exhausting years of frequent hospital visits and physiotherapy when it became clear that their tot Skyler, aged two, was suffering with an unknown condition.
Skyler had been treated at Hull Royal Infirmary and was diagnosed with severe epilepsy but never received a full diagnosis to explain her other symptoms, Hull Live reports.
Sarah described her daughter as a "beautiful and happy baby", who grew into an amazing little girl that would constantly be "laughing and smiling" despite her illness.
Skyler's half-siblings also adored their little sister and are devastated at their loss.
Sarah, from North Hull, said: "When she was born, doctors told us that she was perfectly healthy and we didn't realise that anything was wrong until she was five or six months old.
"We could just tell that something wasn't quite right and it was around this time that she had her first seizure.
"When we took her to the GP, they didn't have a clue what her condition was. We know she had a rare form of epilepsy and was being treated for that but we never received a full and explained diagnosis.
"She also had to have special milk and was fed through a PEG in her stomach because she couldn't eat independently. Skyler would have been three years old in July and had very different abilities to other children her age.
"She could never walk or crawl and also couldn't speak. With physio treatment, she was able to move her arms and legs and seemed to really be improving but her progress was just so up and down and she was constantly surrounded by different medical people.
"Through all this, she was
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